Hello, I’m a divorced 43-year-old newbie with twin daughters from Los Angeles, CA. I’m a Sound Engineer in sound editorial at a major film studio. Let me start at the beginning, back in 2010 I noticed I was always tired even after having slept for 6-8 hours a night. I would be tired all darn day. I even had some head bobs, like I was going to fall asleep, while sitting in conversation in a dimly lit an edit room with my editors. A few coworkers of mine were raving about how much better they felt since they got a CPAP. So, I went to my primary told him that I’m tired all the time and that I snore at night. He sent me to what I was told is the best sleep doctor in LA. My sleep physician had me come in for an overnight test and he diagnosed me with mild sleep apnea. He prescribed me a CPAP. I immediately started on that and I felt I was getting better sleep, but after a few years, I still felt tired all day long. I could fall asleep anywhere I wanted. I never fell asleep while driving or anything like that, just if I wanted to lay down, I could sleep. Finally, in 2016 I went back to my sleep specialist and told him that I feel like I’m getting better sleep, but I’m still tired all damn day. So he ordered up another overnight test along with what I think they call an MSLT. I was to stay there the next day and they’d have me lay back down every 2 hours for the next 10 hours. Anyhow, I fell asleep in about 6 mins and was in REM within 5 minutes of that…every two hours.
I was diagnosed in July 2016 with Narcolepsy EDS. He put me on Provigil but I got headaches from it. Next up was Adderal 10mgs, which didn’t do much. So he upped those over and over. Finally what worked was 40mgs of Adderal XR coupled with 4.5gs of Xyrem twice a night. Of course, I started my divorce in November, so that stress coupled with the Adderal XR & Xyrem and I y lost about 30 lbs, but I’ve gained back about 8lbs. I’ve been on this prescription for quite a while. Of course, the Adderall XR wears off around 2-4pm these days. I can take another 20mgs of the regular Adderal if needed. I try not to unless I have something I have to do that evening. I would really like to be off all pharmaceuticals. I don’t like the idea that I will be on some sort of pharms for the rest of my life.
A couple months ago, I told my sleep physician that I wanted to possibly look into dropping the CPAP as it’s going to make it really hard on me when I start to date. I was thinking of looking into the surgery to open my throat up more as I have a larger uvula. He said it’s a really painful surgery and suggested that since my apnea was mild, maybe I take the overnight test again and see if we can drop the CPAP. I did the test again and it was a waste of time as my apnea is now much worse. He said that it’s probably caused by the use of Xyrem. Great! Now I’m stuck being a hosehead and a narcoleptic. That should make it all the easier to date. (insert sarcasm here)
All this being said, I’m looking for help with my anxiety and agitation. I really feel the Adderall and Xyrem have made me robotic and agitated. I don’t want to take any more pharms, so I’ve been looking into taking CBD oil to help with the anxiety and agitation. Maybe I could give up the Xyrem all together and just use CBD oil w/THC to help with both the agitation/anxiety and sleep at night. I’d love to hear if anyone else has gone down this path. I originally thought that I’d just use the CBD oil, but now from all the research I’ve been doing, I think I’ll have to look at a 1:1 ratio CBD/THC. Of course, I’ll be looking into all this much further and I’ll bring it all up to my sleep physician soon.
Thanks for reading.